LetLiamLive
Our little Liam has SMA - Spinal Muscular Astropy - ISIS Pharmaceuticals has an experimental drug called SMNRx that can save his life! We using this petition to pressure ISIS into allowing them to have the three experimental doses of SMNRx for Liam - the sooner the better as it is imperative that he be treated early on. Special authorization for this treatment has been granted to the family through Health Canada and the SAP program. HOWEVER - ISIS has not accepted the authorization! This petition is asking ISIS to PLEASE ACCEPT for Liam to receive this very important medication ASAP!
Notre petit Liam est atteint d'Amyotrophie Spinale, une maladie génétique dégénérative qui lui donne une espérance de vie de deux ans. La pharmaceutique Isis expérimente un composé prometteur appelé SMNRX, mais refuse de nous le fournir malgré une autorisation spécial octroyé par Santé Canada et son programme PAS!. Cette pétition est un outil pour amener Isis à revoir sa position. S'il vous plaît ISIS, accepter de fournir maintenant à Liam les trois doses expérimentale de SMNRX. Le miracle est encore possible, vous savez ISIS qu'avec l'Amyotrophie Spinale le plus tôt possible est le mieux, en plus de sauver une vie, vous pourriez éviter à Liam des handicaps sévères.
Yan Défossés Contact the author of the petition
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