Kalydeco and Orkambi: Our Cystic Fibrosis Warriors fight for life saving wonder drugs Orkambi and Kalydeco.
Contact the author of the petition
This discussion topic has been automatically created of petition Kalydeco and Orkambi: Our Cystic Fibrosis Warriors fight for life saving wonder drugs Orkambi and Kalydeco..
Guest |
#272016-11-14 00:01Everyone needs to have a better quality of life, if there is a drug out there to help these children then they should be entitled to it |
Guest |
#282016-11-14 00:05Disgraceful this little girl can't get the meds she needs for her cf |
Guest |
#292016-11-14 01:34Why can't we do everything in our power to give anyone, especially children, the best medical help possible |
Guest |
#302016-11-14 12:55Because I have a little friend in Ireland and her name is Chloe Ryan she needs your help please xxxx |
Guest |
#32 Re: Re:2016-11-14 20:02Yes they do! They contacted us to sign this petition. (I'm her aunt) |
Guest |
#332016-11-14 20:14My daughter Molly is also one of the 18 children who should get Kalydeco. Please keep signing x |
Guest |
#352016-11-14 20:39I signed because they are children just starting their life's and it shouldn't have to be like this they should receive the drug without fighting for it |
Guest |
#362016-11-14 20:46Friends. The children are our future. We are supposed to look after them and protect them. |
Guest |
#37 Re: Re: Re:2016-11-14 20:52Great! Thank you xxx |
Guest |
#382016-11-14 20:56Just trying to help all the children whom is suffering from this terrible illness. |
Guest |
#422016-11-14 21:30Because every sick child should b given the drugs that are available to improve their quality of life if they have a long term illness |
Guest |
#432016-11-14 21:39My daughter aged 4 needs this drug to make life changing difference to her beautiful life my moos xxxx |
Guest |
#472016-11-14 22:29Because we as a country should value or kids livestream do everything we can to keep them healthy and alive |
Guest |
#492016-11-14 22:47for our buddy Eadaoin and all who have C.F. This treatment is compulsory, not a luxury. |
Guest |
#502016-11-14 22:53A child's health and quality of life can't, and should never, be measured by monetary cost |
|
Petition Against the Installation of a Biodigester at Wilson Rd, Fairfield Township, Madison County, Ohio
Bend to the Beach Road Initiative
Richard Bong State Recreation Area Class 1 Dog Training Area Requested Change
Hardworking People Against AB 928
Wyandanch Warriors Vs Wyandanch Wolves
Proclamation for a Restored Republic
PETITION OPPOSING ARROWHEAD AIRPARK IN CASS COUNTY MISSOURI
The adoption and ratification of a new calendar for the United Global Trade Organization
Protect the pure breed Danish-Swedish farmdog from puppymills and inbreeding
Open Letter of scientists and entrepreneurs regarding MFF and FP10
Is there something you want to change?
Change doesn't happen by staying silent. The author of this petition stood up and took action. Will you do the same? Start a social movement by creating a petition.
Start a petition of your ownOther petitions you might be interested in
Medirest Staff Barnet Hospital Pay Rise increase for 15%
121 Created: 2025-06-20
Time period | Number of signatures |
---|---|
All time | 121 |
30 days | 121 |
Stop Cheltenham Borough Council from Removing Safety Fence From Victim Tenant
29 Created: 2025-06-09
Time period | Number of signatures |
---|---|
All time | 29 |
30 days | 29 |
Alternative access to mount Carmel height /bracken hill
26 Created: 2025-06-10
Time period | Number of signatures |
---|---|
All time | 26 |
30 days | 26 |
Open Letter of scientists and entrepreneurs regarding MFF and FP10
598 Created: 2025-06-10
Time period | Number of signatures |
---|---|
All time | 598 |
30 days | 597 |
ACT NOW – DEADLINE: 18 JUNE 🛑 PROTECT BRIDGNORTH SAY NO TO MASSIVE OVERDEVELOPMENT
20 Created: 2025-06-15
Time period | Number of signatures |
---|---|
All time | 20 |
30 days | 20 |
Élhetőbb gyermekkor Duchenne izomdisztrófiában
4513 Created: 2025-06-09
Time period | Number of signatures |
---|---|
All time | 4513 |
30 days | 4513 |
Reject Net Zero policies
492 Created: 2023-09-20
Time period | Number of signatures |
---|---|
All time | 492 |
30 days | 12 |
Stop Discrimination Against Taxi Drivers at South gloucester city council ,We Demand Action Now
14 Created: 2025-06-17
Time period | Number of signatures |
---|---|
All time | 14 |
30 days | 14 |
Uphold Christian freedom and repeal 'woke' laws
810 Created: 2023-07-20
Time period | Number of signatures |
---|---|
All time | 810 |
30 days | 8 |
Stop Transgenderism Now!
567 Created: 2024-02-19
Time period | Number of signatures |
---|---|
All time | 567 |
30 days | 7 |
No Bail For Rob Evans #JusticeForVanessa
300 Created: 2025-06-23
Time period | Number of signatures |
---|---|
All time | 300 |
30 days | 300 |
Introduce Goodnites XXL-Equivalent DryNites in the UK for Older Children and Neurodivergent Youth
6 Created: 2025-06-05
Time period | Number of signatures |
---|---|
All time | 6 |
30 days | 6 |
Stop The Migrant Channel Crossings
1897 Created: 2021-07-15
Time period | Number of signatures |
---|---|
All time | 1897 |
30 days | 5 |
For the maximum effective sentence for Gabriela Sashova and Krasimir Georgiev, and for legislative changes envisaging harsher penalties for crimes committed against animals!
203715 Created: 2025-03-14
Time period | Number of signatures |
---|---|
All time | 203715 |
30 days | 125 |
Petition to preserve University Botanic Gardens Ljubljana, which has been operating since 1810.
7881 Created: 2024-04-24
Time period | Number of signatures |
---|---|
All time | 7881 |
30 days | 20 |
Return to the UK's Christian Constitution
533 Created: 2024-08-14
Time period | Number of signatures |
---|---|
All time | 533 |
30 days | 3 |
Stop the solar farm next to Barnsdale Gardens
3549 Created: 2022-08-02
Time period | Number of signatures |
---|---|
All time | 3549 |
30 days | 3 |
National schools regatta shall be hosted at dorney lake forever more
651 Created: 2025-05-23
Time period | Number of signatures |
---|---|
All time | 651 |
30 days | 2 |
Justice For Cwecwe
1173282 Created: 2025-03-27
Time period | Number of signatures |
---|---|
All time | 1173282 |
30 days | 592 |
STOP THE MINE IN NUNASVAARA
820 Created: 2025-03-24
Time period | Number of signatures |
---|---|
All time | 820 |
30 days | 57 |