WE WANT Neurofibromatosis TO BE RECOGNIZED AS A CONDITION
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This discussion topic has been automatically created of petition WE WANT Neurofibromatosis TO BE RECOGNIZED AS A CONDITION.
 Anonymous |
#1 my daughter2013-09-14 16:04my daughter almost died after a fair ride due to a tumour in her neck .. was never told it could happen |
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Guest |
#22013-09-14 16:05we need more support for all of us we all get scared and very low talking helps not to give medical advice but to share our experience's with each other |
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Guest |
#52013-09-14 17:41More information needs to be put out there about NF! Too many do not know what it is! |
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Guest |
#72013-09-16 12:41a progressive condition which can lead to many other health problems |
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Redditch United FC |
#9 Please sign2013-11-01 14:20Please sign our petition, it would be greatly appreciated - cheers http://www.petitions24.com/redditch_united_refused_relocation |
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Guest |
#102013-11-01 15:18I have NF(1) I really getting tired of the suffering of my condition of NF(1) I hope they a Cure.. |
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Guest |
#112013-11-01 15:22Please recognize this genetic disorder. people are suffering and we need to find a cure with research. |
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Guest |
#122013-11-03 15:49My daughter has the spots, and my fiancee has it so does his family. |
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Guest |
#132013-11-08 10:15o all my NF ladies in uk .... who up for doing a Calendar Girls type thing next year to raise awareness need 12 at least lol i dont mean naked but doing things for each month with facts about nf on each month need help tho as cant do it alone even get kids in it |
This post has been removed by the site administrator (Show details)
2014-06-14 21:48- Date of removal: 2014-12-19
- Reason for removal:
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Guest |
#162015-06-06 18:17I HAVE NEUROFIBROMATOSIS HAD A TUMOUR ON THE OPTIC NERVE AND HAD IT REMOVED BUT FEFT ME BLIND IN ONE EYE AND WITH EPLESEPY HAVE TWIN GIRLS IN 1972 ONE IS FREE FROM IT BUT THE 0THER HAS THE MARKS AND TUM0URS HOPE THIS HELPS THE PETITION |
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SANDY |
#17 NEUROFIBROMASTSIS2015-06-06 18:26MORE SHOULD BE DONE TO RECONIZE THE COMPLAINT HAVE TWINS GIRLS IN 1969 ONE IS FREE AND THE OTHER HAS IT AND WAS A SLOW LEARNER I HAVE AS WELL MY FATHER HAD THE BIRTHMARKS HOPE THIS HELPS |
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Pretty |
#182015-12-11 16:24Yes please I wish that thise conditions go recognised.I am an NF1individual, and currently living in Germany, I was surprised to meet people who don't understand what I have on me and what I go through. ...but anyway i still have to move on strengthening myself through Faith in God..no matter what..He is still my God and He loves mi while no one else in the world understands me fully |
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