Product review of medical foods for PKU - Low Protein Diet
Contact the author of the petition
This discussion topic has been automatically created of petition Product review of medical foods for PKU - Low Protein Diet.
Guest |
#512016-11-19 01:50It is ridiculous that an illness which every baby born in this country is checked for, does not have an up to date list of foods available for free to those disgnosed. It is a very difficult diet to follow and those who keep to the diet SAVE MONEY FOR THE HSE. Wake up and help them help the HSE save money. Its not like no one knew about the illness. What exactly is the delay? |
Guest |
#682016-11-19 22:32My sister is one of the longest surviving people with PKU. The availability of these foods would enhance her life greatly. It is a difficult condition and sufferers need our support. |
Guest |
#702016-11-20 01:06My Dear Friend has twin girls who sadly Both suffer from this condition... Any Help, tests, changes & funding can only bring a more POSSITIVE outcome for all. |
Guest |
#722016-11-20 08:33I know someone whose little daughter has pku. I also know someone my age who has it. It's a very serious condition and very restrictive. It's shocking that whoever is in charge of this is not on top of it. Perhaps there needs to be some liasion with the people who have it. |
Guest |
#732016-11-20 10:50Its important that our children have access to a variety of foods. There are some wonderful foods available throughout Europe and the rest of the world and our children are denied access to them. We owe it to all children with PKU and the future generations of PKU patients to ensure these children stay on diet to get the best possible outcomes for them. There is a risk that they will come off diet if we do not provide them with a variety of foods and we all know the consequences of this!! |
|
Open Letter from Indiana University Bloomington Faculty re: Campus Protests and Arrests
Investigation and Prosecution of Those Individuals Responsible for Crimes Against Humanity
Petition to let Pop play Wemby against Portland on Friday 12/29
Indiana University Bloomington Faculty Requesting President Whitten Remain as President
Is there something you want to change?
Change doesn't happen by staying silent. The author of this petition stood up and took action. Will you do the same? Start a social movement by creating a petition.
Start a petition of your ownOther petitions you might be interested in
The Grumpy Cook - Bale House, Fairlight
566 Created: 2024-03-31
Time period | All countries | United Kingdom |
---|---|---|
All time | 566 | 563 |
30 days | 452 | 449 |
Braunton needs more Affordable, Secure Homes for Rent
302 Created: 2024-03-28
Time period | All countries | United Kingdom |
---|---|---|
All time | 302 | 299 |
30 days | 302 | 299 |
Stop the Unfair Eviction of Barry Killick and Ann Skilton
276 Created: 2024-04-26
Time period | All countries | United Kingdom |
---|---|---|
All time | 276 | 269 |
30 days | 276 | 269 |
Cape to Cairo on Foot: World Record Attempt in Jeopardy in Ethiopia
839 Created: 2024-04-15
Time period | All countries | United Kingdom |
---|---|---|
All time | 839 | 175 |
30 days | 839 | 175 |
Petition for Single Storey Front Extension and New Dome Approval and Review of Community Centers As Place Of Worship
118 Created: 2024-04-12
Time period | All countries | United Kingdom |
---|---|---|
All time | 118 | 118 |
30 days | 118 | 118 |
Stop Transgenderism Now!
286 Created: 2024-02-19
Time period | All countries | United Kingdom |
---|---|---|
All time | 286 | 276 |
30 days | 119 | 113 |
Stop the solar farm next to Barnsdale Gardens
2676 Created: 2022-08-02
Time period | All countries | United Kingdom |
---|---|---|
All time | 2676 | 2614 |
30 days | 100 | 99 |
Stop the proposed HMO at 14 Hill Crescent
140 Created: 2024-04-03
Time period | All countries | United Kingdom |
---|---|---|
All time | 140 | 140 |
30 days | 88 | 88 |
Gaglebrook school parking restrictions - Increase grace period to 30 minutes
50 Created: 2024-05-02
Time period | All countries | United Kingdom |
---|---|---|
All time | 50 | 49 |
30 days | 50 | 49 |
Rescue MFM church victims from Dr.DK Olukoya
147 Created: 2024-04-24
Time period | All countries | United Kingdom |
---|---|---|
All time | 147 | 49 |
30 days | 147 | 49 |
Petition for Review and Investigation of Wrongful Prosecution in Senzo Meyiwa Murder Trial
1570 Created: 2024-04-26
Time period | All countries | United Kingdom |
---|---|---|
All time | 1570 | 48 |
30 days | 1570 | 48 |
Save Felpham Village Post Office
39 Created: 2024-03-27
Time period | All countries | United Kingdom |
---|---|---|
All time | 39 | 38 |
30 days | 36 | 35 |
let olivier attend prom
33 Created: 2024-04-23
Time period | All countries | United Kingdom |
---|---|---|
All time | 33 | 30 |
30 days | 33 | 30 |
Keep the Billingshurst Primary school logo the same
20 Created: 2024-04-24
Time period | All countries | United Kingdom |
---|---|---|
All time | 20 | 20 |
30 days | 20 | 20 |
Bring back Rowntree's Cabana chocolate bar!
1082 Created: 2020-01-04
Time period | All countries | United Kingdom |
---|---|---|
All time | 1082 | 1063 |
30 days | 20 | 18 |
Stop the Relocation of Managers/Head Chefs! Would you be happy seeing your head chef/manager permanently moved to another branch?
15 Created: 2024-04-17
Time period | All countries | United Kingdom |
---|---|---|
All time | 15 | 15 |
30 days | 15 | 15 |
Uphold Christian freedom and repeal 'woke' laws
711 Created: 2023-07-20
Time period | All countries | United Kingdom |
---|---|---|
All time | 711 | 685 |
30 days | 17 | 15 |
BAN KURT FROM TITANS QUASAR
17 Created: 2024-04-25
Time period | All countries | United Kingdom |
---|---|---|
All time | 17 | 13 |
30 days | 17 | 13 |
Petition to preserve University Botanic Gardens Ljubljana, which has been operating since 1810.
4442 Created: 2024-04-24
Time period | All countries | United Kingdom |
---|---|---|
All time | 4442 | 11 |
30 days | 4441 | 11 |
فعال سیاسی بیژن مرادی در خطر دیپورت به ایران توسط دولت ترکیه است
465 Created: 2024-03-24
Time period | All countries | United Kingdom |
---|---|---|
All time | 465 | 41 |
30 days | 57 | 11 |