pls
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World Register of PLS Patients
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This is a world register of patients with Primary Lateral Sclerosis (PLS).
The purpose of the register is to have access to PLS patients for research purposes.
If we learn of a research project which requires PLS patients, we intend to point this out to members, rather than give your e-mail address to the researchers.
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PLS research reports: http://midstodin.blog.is/blog/midstodin/entry/1301799/
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When you sign in, we recommend that you do not show your signature in public
=> answer No to the question: »Show your signature in public?«
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Announcement from the administrator of this websiteWe have closed this petition and we have removed signatories' personal information.European Union's General Data Protection Regulation (GDPR) requires a legitimate reason for storing personal information and that the information be stored for the shortest time possible. |
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