Product review of medical foods for PKU - Low Protein Diet
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update
2017-04-13 10:07:19"Massive thanks to Simon Harris TD for his support & work to help PKU patients in Ireland get access to more prescription foods. PKU is a small community in Ireland but with his help & lobbying from parents and friends (6,000 representations were made) from June 2017, for the first time in 6 years, we will have access to new synthetic prescription foods for our kids. Simon Harris promised he would help and he did. Thanks to everyone else who helped us by signing a petition, liking a post or emailing a TD. It is a small but important step for PKU patients in Ireland PKU Association of Ireland" and also from Adults with PKU, Homocystinuria, Galactosemia and Allied disorders who require a low protein diet for life in order to maintain basic overall health.
Gwen Kennedy
Last 36 hours of petition before sending
2016-11-28 15:16:01Please reshare this petition to give it a last push accross social media and email family friends and work mates your childs friends parents and anyone else you have contact with to do the sane.Many thanks to the 1172 to thoose of you who have signed thus far.
Best wishes,
Gwen Kennedy
Adult with HCU an allied isorder of PKU
Gwen Kennedy
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